Gilenya & Ocrevus

In October 2010 I first learned that Gilenya had been approved by the FDA.  The first oral treatment for Multiple Sclerosis! So exciting – but I didn’t dare to really believe that I would be switched to it. I knew that insurance would never cover it as long as I was able to use interferon instead, and I had been using Rebif for awhile.

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All I Want For Christmas Is You: A Very Multiple Sclerosis Christmas

Multiple Sclerosis ChristmasAh, the holidays. When everyone is relaxed as sparklingly clean homes are aglow with candlelight reflected in bright smiles at gifts left by Santa, toasting glasses, shiny giftwrap ribbons and bows…

Let’s be honest – in many ways the holidays suck.

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PML And The JC Virus

PMLTysabri is a dream come true for many individuals with Multiple Sclerosis. Personally, I have opted to take Gilenya (for now), but Tysabri was very tempting when I considered my options after it became apparent that Rebif would not work out for me any longer. However, along with Tysabri’s side effects comes one very sinister danger: PML. One patient on Gilenya has been diagnosed with PML, and it can happen to anyone whether or not they have MS. Knowing that medication (especially newer medications) may bring a risk of PML has frightened us all.

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Pursuing Education With MS

For almost a week I have returned to the status of “college girl.” No, I have not been downing jello shots or going to keg parties. While I have known for most of my life that a college degree is necessary for most careers, until recently I did not have the opportunity to truly consider completing my degree. After my diagnosis I was certain that it would never happen – I could barely type, stay awake, or have coherent thoughts. Time has passed – I now find myself enrolled in college again. In hindsight I see signs that I already had Multiple Sclerosis in college, but certainly not as advanced as it now is. Pursuing education with MS is intimidating.

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